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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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Home›By Situation›We just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. NYC Aging (DFTA) covers Staten Island; the local NY Connects access point is CASC at (718) 489-3954.
  5. Understand what memory care will require later. New York requires SNALR certification, layered on an ALR license, for a community to legitimately offer memory care.

Questions families ask

What's the difference between an Adult Home and an Enriched Housing Program in New York?

Both are base-level Adult Care Facility license types under NYSDOH, but Enriched Housing Programs are generally structured around apartment-style independent units with supportive services, while Adult Homes are typically more institutional in layout. Either can add ALR certification on top to become licensed for assisted-living-level care.

Does New York rate assisted living communities the way it rates nursing homes?

No. Federal CMS star ratings apply only to Medicare/Medicaid-certified nursing homes, published at profiles.health.ny.gov/nursing_home and on CMS Care Compare. Assisted living and memory care communities in New York do not carry CMS star ratings -- the only public quality record for them is the NYS Health Profiles inspection history.

What is Managed Long Term Care (MLTC), and is it mandatory on Staten Island?

MLTC is New York's Medicaid managed-care delivery system for long-term care -- either PACE (age 55+) or MLTC Partial Capitation/Medicaid Advantage Plus. Enrollment has been mandatory in New York City, including Richmond County/Staten Island, since 2012 under Medicaid Redesign Team Initiative #90, approved August 31, 2012.

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